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Cerebral Palsy

    "A group of permanent disorders of the development of movement and posture causing activity limitations that are attributed to nonprogressive disturbances that occurred in the developing fetal or infant brain…"

    Rosenbaum P, Paneth N, Leviton A. et al. DMCN Suppl 2007; 109:8-14

Cerebral Palsy Facts

  • Cerebral palsy (CP) is the most common motor disability in childhood
  • Worldwide, 1.5 to more than 4 per 1000 newborns will develop CP
  • In the United States, CP affects about 10,000 newborns each year
  • 1 in every 303 school children (8 year olds) in America have CP
  • There are more than 800,000 individuals with CP living in the USA
  • Average lifetime "extra" cost* of having CP is $921,000 (2003)
    *This is added to the cost that an individual without disability incurs over a lifetime
  • The estimated total cost to the USA for caring for all individuals with CP (born in 2000) for their lifetime is 11.5 BILLION dollars

Life Long Consequences

  • CP exacts a huge burden on individuals with CP
    • Loss of walking skills
      • 1/3 will never walk
      • At least half of those who do learn to walk will lose this ability as adults
    • Multiple disabilities. 60% with CP will have one or more of the following:
      • Intellectual impairment
      • Epilepsy
      • Vision Impairment
      • Autism
      • Hearing loss
    • Pain
      • 60-70 % of teenagers and adults with CP live with pain
    • Poor Health
      • Individuals with CP have more health problems
      • Adults with CP are at greatly increased risk for life threatening conditions such as heart disease and cancer
    • Social/Emotional
      • Less than half of adults with CP are competitively employed
      • Less than two-thirds are able to live independently
      • High risk of isolation and loneliness
  • CP exacts a huge burden on Families
    • Parents'/ caretakers' lost time from work and lost wages
    • Negative impact on career (loss of productive years)
    • Negative impact on caretaker's health
    • Emotional/ psychological toll on all parents and siblings
  • CP exacts a huge burden on society

Disproportionate Allocation of Resources

  • NIH funding for CP estimate: ONLY $24 million
    This is 1/8 of the funding allocated for Parkinson's or other neurodegenerative diseases
  • All neurodegenerative diseases got $1,762 million from NIH in 2010